Statewide Information Resource & Referral for Advocacy & Service for People with Developmental Disabilities

Health/Human Services Resources

Autistic Self-Advocacy Network (ASAN) – A Self-Advocate’s Guide to Medicaid
ASAN is proud to announce the release of our plain language resource “A Self-Advocate’s Guide to Medicaid.” This resource was developed in collaboration with the Autism Services, Education, Resources and Training Collaborative (ASERT), and with funding from the Special Hope Foundation. This resource is the third of several that ASAN is developing to equip self-advocates to participate in important conversations about our lives and the services we rely on.

Children’s Environmental Health Network
The Children’s Environmental Health Network is a national multi-disciplinary organization whose mission is to protect the developing child from environmental health hazards and promote a healthier environment.

CHP – The University of Illinois at Chicago Center on Health Promotion Research for Persons with Disabilities
The CHP was established in 1997 with the primary aim to identify people with disabilities who are at risk for developing numerous health complications (ie, secondary conditions) and provide them with the knowledge and skills necessary for promoting their own independence, equal opportunity, quality of life, and longevity.

Dental Care for the Child with Special Needs
Information from the American Academy of Pediatric Dentistry on Dental Care for the Special Child.

Dental Clinics in Illinois – from IFloss Coalition
Illinois Dental Clinics list. Update 2011.

Dental Coverage in Illinois’ Medicaid Program
From EverThrive Illinois. Information on dental services covered by Medicaid in Illinois.

Dental Lifeline Network
Dental Lifeline Network (formerly the National Foundation of Dentistry for the Handicapped) is a national humanitarian organization  providing access to comprehensive dental services for people with disabilities or who are elderly or medically at-risk.  Dental Lifeline Network provides these services through a national network of direct service programs that involve 15,000 volunteer dentists and 3,200 volunteer labs.

Department  of Health and Human Services – Center for Disease Control and Prevention – National Center on Birth  Defects and Developmental  Disabilities:  A – Z Information.
The CDC works to identify the causes of birth defects and developmental disabilities, help children to develop and reach their full potential, and promote health and well-being among people of all ages with disabilities. CDC also works to prevent injuries, such as traumatic brain injury, and their resulting disabilities.

Feeding Illinois
Feeding Illinois is the state food bank association. We work with eight food banks that serve every county in Illinois through a vast network of partners.

Genetics Home Reference – Your Guide to Understanding Genetic Conditions – A Service of the U.S. National Library of Medicine
Genetics Home Reference provides consumer-friendly information about the effects of genetic variations on human health. The resources on this site should not be used as a substitute for professional medical care or advice. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

Health Care for Adults with Intellectual and Developmental Disabilities – A Toolkit for Primary Care Providers
From Vanderbilt Kennedy Center. Our hope is that this website will give virtually every U.S. primary care provider electronic access to best practice tools, and thus will enable each physician to more readily serve adults with intellectual or other developmental disabilities.

IHWAP – Illinois Home Weatherization Assistance Program
The Illinois Home Weatherization Assistance Program (IHWAP) is designed to help low income residents save fuel and money, while increasing the comfort of their homes. It is provided by the Illinois Department of Healthcare and Family Services and implemented through Illinois Community Action Agencies.

Illinois Department of Healthcare & Family Services – Client Enrollment Services Compare Plans Information
Find health plans in the county where you live. Choose your county from the menu and compare the services each health plan offers.→ If you are in the Integrated Care Program:  Choose your county and click the second tab marked “Integrated Care Plans.”  → If you are in the Medicare-Medicaid Alignment Initiative: Choose your county and click the third tab marked “Medicare-Medicaid Plans.”

Illinois Department of Human Rights – Guidebook on Reasonable Accommodations and Modifications: A Guide for Housing Professionals
In accordance with the Federal Fair Housing Act, this book provides guidance and clarification on the accommodations and modifications that must be made in housing for persons with disabilities and their family members.

Illinois Department of Human Services Q & A Document on Medical Assistance, Medicaid, Medical Card & Health Insurance
Answers to frequently asked questions including resources for “which doctor/dentists accept the medicaid card?”

Illinois Homeless Shelters
Shelter information across the state.

Keep Cool Illinois
The KEEP COOL ILLINOIS website offers a wide variety of tips for households to avoid heat-related health problems as well as how to save energy by lowering their electricity bills and find cooling centers throughout the state. The website also provides information about state energy assistance programs, including the Low Income Home Energy Assistance Program (LIHEAP), other energy-related resources and information about resolving utility service complaints.

Keep Warm Illinois
The Keep Warm Illinois site was launched to help all Illinoisans – especially the elderly, families with small children, people with disabilities and other vulnerable residents – stay warm, healthy and safe this winter. The Keep Warm Illinois website offers a variety of tips for households and businesses to save energy and lower their utility bills, including a web-based tool to conduct a home energy audit. The website also provides information about state energy assistance programs and other energy-related resources as well as help in resolving utility service complaints.

LIHEAP – Low Income Home Energy Assistance Program
For many Illinois households, energy costs place a severe and continuing stress on the family’s budget. In some instances, the household is forced to make painful decisions regarding which bills to pay and which necessities to survive without. The Low Income Home Energy Assistance Program (LIHEAP) is designed to assist eligible low-income households pay for winter energy services. It is provided by the Illinois Department of Healthcare and Family Services and implemented through Illinois Community Action Agencies.

Medicaid and Long Term Supports and Services – From The Arc of the United States
The Medicaid Reference Desk is a tool to help people with intellectual and developmental disabilities find out what Medicaid can offer them.

National Health Law Program (NHelp) – Advocates’ Guide to Accessibility in Medicaid Managed Care Grievances and Appeals
This Advocate’s Guide from Disability Rights Education and Defense Fund, Justice in Aging and National Health Law Program describes steps to take for implementing the new HHS regulations in a way to “ensure that people with disabilities have equal access to the grievance and appeal and State fair hearing systems ….” 

National Marrow Donor Program
The National Marrow Donor Program (NMDP) helps people who need a life-saving marrow or blood cell transplant. We connect patients, doctors, donors and researchers to resources they need to help more people live longer, healthier lives.

NeedyMeds.org – Information you need to get your medicine!
NeedyMeds is the best source of information for people who need help with the cost of medicine and other healthcare expenses. This site is like the Yellow Pages. We do not supply medications or financial assistance but we do provide information so you can find programs that will help you.

Region 4 Genetics Collaborative Family Resources
Information and resources to help families learn more about:
•Rare heritable disorders diagnosed through newborn screening
•The Medical Home
•Medical specialists and laboratories that serve children diagnosed with these very rare conditions and their families
•Support resources available to families
•Frequently asked questions about genetics services

Socialserve.com
Socialserve.com is a free, online, searchable database for tenants, landlords and housing agencies to list and find affordable places for rent or sale. You can search for housing based on price, Section 8, distance to public transportation and accessibility features like ramps, accessible parking and automatic door entry. Choose the city you want and then the accessible tab for accessible housing.

UIC Specialized Care for Children – DSCC
Information and resources from DSCC. We partner with Illinois families and communities to help children and youth with special healthcare needs connect to services and resources.

Ultimate List of Grants and Resources for Families with Special Needs
On the website for Joyful Journey Mom at joyfuljourneymom.com.

UnitedHealthcare Children’s Foundation Medical Grants
The UnitedHealthcare Children’s Foundation is a 501(c)(3) non-profit charity dedicated to facilitating access to medical-related services that have the potential to significantly enhance either the clinical condition or the quality of life of the child and that are not fully covered by the available commercial health benefit plan. This “support” is in the form of a medical grant to be used for medical services not covered or not completely covered by commercial health benefit plans.

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